Amy Dehn Brown and husband Ronald, of Kearney, MO, are parents to 3 boys. Two of the boys have Sanfillippo Syndrome, a rare genetic disorder. Amy will discuss their familys journey and the outcome of this disease. Thanks to: Massimo DeAngelis "Child Care MIx" http://Kunaki.com/Sales.asp?PID=PXOOZTIMVR Talk, Walk & Learn Center, LLC/SHIFTS Night Care Center, LLC http://www.twlsnc24hr.com or http://www.twl24.com
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Death
| children | Sanfilipp Syndrome | team | hospice